Sunday, August 7, 2011

Good Days, Bad Days

I've been doing so well on Humira that I nearly forgot how painful a Crohn's Disease flareup can be. Out of the blue Saturday night, with no warning at all, the nearly forgotten pain of a partial intestinal obstruction hit me like a ton of bricks! I took some Vicodin ES, Valium, and basically medicated myself to sleep. Please do not try this without talking to your doctor first, as it's a potent combination.

For me the pain med cocktail worked, and I slept for the next 14 hours. The next morning was my regularly scheduled Humira injection which I took with no issues.

Today, back to normal; no pain at all. The moral of all of this is it's a big circle: good days, bad, and back to good! Just have to accept the inevitable, have faith, and enjoy the ride!

1 comment:

  1. Interesting blog, Chron's sounds like a difficult disease to deal with. My Positive thoughts are with you, looking forward to the next post!


My Crohn's Experience: Introduction

My Crohn's experience started when I was diagnosed with Crohn's Disease at the age of 15, during a time when very little was known about this debilitating illness, and drug treatment options were few. In this blog I would like to recount my nearly 40 years of experiences with this illness; the good, the bad, and the ugly, and discuss current medications available to treat Crohn's Disease, such as Humira, Remicade, 6-MP, Prednisone, and others.

Crohn's Disease is classified as an inflammatory illness which is caused by the body's immune system attacking healthy cells in the intestinal tract, which can lead to intestinal blockage, rupture, sepsis and death if left untreated.

I have had three intestinal resections due to Crohn's Disease and the last nearly cost me my life. I say this not to be dramatic, but to raise awareness that ignoring symptoms can lead to serious consequences. In 1999, I had what I knew was a serious flareup, but instead of checking into the hospital for treatment, I tried to ignore my symptoms. I ended up in the ER with a 105 degree fever, semi-conscious from septic shock, with a heartbeat in lethal arrhythmia and requiring CPR. My intestine had broken open and the septic shock had set in. I spent four days in the ICU after having major surgery to repair my intestine, followed by IV medicines to fight infection. The doctors did not expect me to survive the night, but somehow I did, and I share all of this in order to tell you that if you suspect something is wrong, and you have a high fever and severe abdominal pain, RUN, do not walk, to your local ER. Call 911 if necessary, but definitely do not take chances. Get to a hospital pronto!